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I tried pimozide with the starter pack. i experienced terrible nausea, insomnia, hot flashes, racing heart and fever. my doctor reduced the dosage back to 12.5 mg but with very little improvement of side effects. she finally told me to stop taking it. i have had great results with my other medications and i wasn't having any issues but my doctor wanted me to try this new "great" medication. i haven't felt this bad in years. if i were having problems i could understand her trying the pimozide with me but for me this medicaiton made me feel worse than i have in a very long time. i am relieved to be off of it. in the future if my other medications become less effective i might give it another shot.. but for now "no thanks".
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I have severe bone pain in my legs and frequent bowel movements up to fifteen times per day. parathyroid scan showed nothing abnormal. after taking pimozide only three days i saw marked improvement. after 28 day trial, pain in the legs is 80% improved, (am a multiply operated spine patient so did not expect 100%). bowel movements are more normal and once per day as they should be. this shows with just one month of treatment, that i do have parathyroid disease that was not picked up on scans. now i can pursue treatment through surgery.
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